Welcome to the Invitae Connect Patient Insights Network

寄存器

加入全球患者的行列，共同打造 PIN 大家庭.

開始建立個人檔案

深入瞭解研究報告和臨床試驗.

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推動研究進展，加速研發新療法.

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our voice matters. The Invitae Connect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Invitae Connect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.
 
A Patient Insights Network, or PIN, is more powerful than a traditional patient registry. It is an interactive, online platform for surveying disease communities, uploading medical records, tracking health outcomes and sharing de-identified disease data. It’s HIPAA compliant, secure and research-ready.
 
This PIN can help generate research and academic interest. It can expedite trial recruitment and ultimately generate more progress toward treatments and cures. By adding your family's information to this PIN, you help amplify the patient's voice to bring solutions to the larger community. 
 
Invitae is a genetic information company whose mission is to bring genetic information into mainstream medical practice to improve the quality of healthcare for billions of people. 

影片

觀看 ConnectMPS 線上研討會！

想瞭解 ConnectMPS 及參加辦法嗎？ 想知道 ConnectMPS 如何以家庭為核心，為所有黏多醣症、黏脂質症與相關疾病提供資源嗎？ 請觀看我們的網路研討會回顧，瞭解 ConnectMPS 以及如何參加這項重要計劃。

 

Vimeo 上的 PatientCrossroads 即時會議 (2016 年 8 月 29 日)

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