Welcome to the Invitae Connect Patient Insights Network

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加入全球患者的行列，共同打造 PIN 大家庭.

開始建立個人檔案

深入瞭解研究報告和臨床試驗.

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推動研究進展，加速研發新療法.

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our voice matters. The Invitae Connect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Invitae Connect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.
 
A Patient Insights Network, or PIN, is more powerful than a traditional patient registry. It is an interactive, online platform for surveying disease communities, uploading medical records, tracking health outcomes and sharing de-identified disease data. It’s HIPAA compliant, secure and research-ready.
 
This PIN can help generate research and academic interest. It can expedite trial recruitment and ultimately generate more progress toward treatments and cures. By adding your family's information to this PIN, you help amplify the patient's voice to bring solutions to the larger community. 
 
Invitae is a genetic information company whose mission is to bring genetic information into mainstream medical practice to improve the quality of healthcare for billions of people. 

Partner Organizations

Canavan Research Illinois blue


Canavan Research Illinois

https://www.canavanresearch.org/

Ilyce Randell

ilycerandell@gmail.com

 
CanavanFoundation

 

Canavan Foundation

 

http://www.canavanfoundation.org
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National Tay-Sachs & Allied Diseases Association

https://www.ntsad.org/
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Rare Disease Foundation

https://www.rarediseasefoundation.org/
 ThinkGenetic Advocacy Partner 300pi  

ThinkGenetic

https://www.thinkgenetic.com/

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