Welcome to the Invitae Connect Patient Insights Network

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Schließen Sie sich Patienten auf der ganzen Welt an, um die PIN-Community aufzubauen.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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Y
our voice matters. The Invitae Connect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Invitae Connect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.
 
A Patient Insights Network, or PIN, is more powerful than a traditional patient registry. It is an interactive, online platform for surveying disease communities, uploading medical records, tracking health outcomes and sharing de-identified disease data. It’s HIPAA compliant, secure and research-ready.
 
This PIN can help generate research and academic interest. It can expedite trial recruitment and ultimately generate more progress toward treatments and cures. By adding your family's information to this PIN, you help amplify the patient's voice to bring solutions to the larger community. 
 
Invitae is a genetic information company whose mission is to bring genetic information into mainstream medical practice to improve the quality of healthcare for billions of people. 

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Sharing Partners

ABRALE - Associação Brasileira de Linfoma e Leucemia

Abrasta - Brazilian Thalassemia Association

Acoustic Neuroma Association

Adrenal Insufficiency United

Alagille Syndrome Alliance

American Partnership for Eosinophilic Disorders (APFED)

Association for Creatine Deficiencies

Bow Foundation

C.R.A.V.A.T.

Canavan Disease Research

Cardio-Facio-Cutaneous (CFC) International

CDG Care

Circadian Sleep Disorders Network

Cure GMI Foundation

cureCADASIL Association

Dandy-Walker Alliance, Inc.

FOD (Fatty Oxidation Disorders) Family Support Group

Geisinger Autism & Developmental Medicine Institute

International Essential Tremor Foundation

Jack McGovern Coats Disease Foundation

Jonah's Just Begun

KCNQ2 Cure Alliance

Kidney Cancer Association

Living With Trisomy 13

MdDS Balance Disorder Foundation

National Tay-Sachs and Allied Diseases Association

No Stomach for Cancer

Noonan Syndrome Foundation

PCDH19 Alliance

PMG Awareness Organization, Inc.

Potocki-Lupski Hope Project

PRISMS, (Parents and Researchers Interested in Smith-Magenis Syndrome)

Rasopathies Network

SAMSKARA

Small Cell Ovarian Cancer Foundation

Spastic Paraplegia Foundation

The Chagas Disease Foundation

The Charles E. Holman Morgellons Disease Foundation

The FPIES Foundation

The I Have IIH Foundation

The KAT6A Foundation

The National MPS Society

The Romberg Connection

Trisomy 18 Foundation

Turner Syndrome Foundation

University of Edinburgh

Vestibular Disorders Association

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