| 美國 | ||||||||
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艾比葛蕾絲基金會 (Abby Grace Foundation) |
Wendy Furgeson
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 |
Ben's Dream |
Stuart Sideman
Ph: 617-899-4158
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聖菲利柏氏症治療基金會 (Cure Sanfilippo Foundation) |
PO Box 6902
Columbia, SC 29260
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JLK 聖菲利柏氏症研究基金會 (JLK Sanfilippo Research Foundation) |
JLK 聖菲利柏氏症研究基金會 (JLK Sanfilippo Research Foundation)
PO Box 564 Belmont, MA 02478 |
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Jonah's Just Begun-Foundation to Cure Sanfilippo Inc. |
Jill Wood
Ph: 347-689-2186
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美國黏多醣症協會 (National MPS Society) |
Mark Dant
Ph: 877-MPS-1001
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萊恩基金會 (The Ryan Foundation) |
萊恩基金會 (The Ryan Foundation) www.ryanfoundation.net 214.870.RYAN |
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Team Sanfilippo Foundation |
PO Box 1152
Ronkonkoma, NY 11779
518-879-6571
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兒童醫療研究基金會 (The Children's Medical Research Foundation, Inc.) |
P. O. Box 70
Western Springs, Illinois 60558 |
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澳洲 |
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聖菲利柏氏症兒童基金會 (Sanfilippo Childrens Foundation) |
Megan Donnell
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Boks VZW Belgium |
|
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| 加拿大
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聖菲利柏氏症兒童研究基金會 (The Sanfilippo Children's Research Foundation) |
41 Gwendolen Avenue Willowdale
Ontario Canada M2N 1A1
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Canadian MPS Societyanadian MPS Society |
Kim Angel
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| 法國 | ||||||||
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Le combat de Haitem contre Sanfilippo |
1 bis rue Saint Pierre
93110 Rosny sous bois
法國
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Sanfilippo Sud |
Guilhain Higonnet
法國
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香港
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香港黏多醣症互助小組 |
G/F, Wang Lai House
Wang Tau Hom Estate
Kowloon
香港
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墨西哥
|
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RED Sanfilippo Fundacion |
電話：+52 (477) 1092133
電話：+52 (477) 2802408 León Gto., Mexico |
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紐西蘭
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肝醣儲積症國際倡導機構 (The International Advocate for Glycoprotein Storage Diseases, ISMRD) |
Jenny Noble
電話 +64-7-5448868
167 Hollister Lane
Ohauiti, Tauranga, New Zealand
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|
波蘭
|
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 |
Adam and Lea Versus Sanfilippo
|
Krzysztof and Tola Kusidlo
|
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Mały Maciek i Wielcy Czarodzieje |
Arleta Feldman
波蘭
|
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葡萄牙
|
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Sanfilippo Portugal |
Raquel Marques
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西班牙
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Foundation Sanfilippo B
|
Marta Vazquez
|
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Sanfilippo Barcelona |
Belen Garcia, Spain
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 |
Stop Sanfilippo Fundacion |
Av. Camino de Santiago, 45
28050 Madrid, Spain 610 893 873/637 822 377
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瑞士
|
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Fondation Sanfilippo Suisse |
C/O NAT Services SA
Street Jargonnant 2 Geneva 1207 Switzerland |
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