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ABRALE - Associação Brasileira de Linfoma e Leucemia

Abrasta - Brazilian Thalassemia Association

Acoustic Neuroma Association

Adrenal Insufficiency United

Alagille Syndrome Alliance

American Partnership for Eosinophilic Disorders (APFED)

Association for Creatine Deficiencies

Bow Foundation

C.R.A.V.A.T.

Canavan Disease Research

Cardio-Facio-Cutaneous (CFC) International

CDG Care

Circadian Sleep Disorders Network

Cure GMI Foundation

cureCADASIL Association

Dandy-Walker Alliance, Inc.

FOD (Fatty Oxidation Disorders) Family Support Group

Geisinger Autism & Developmental Medicine Institute

International Essential Tremor Foundation

Jack McGovern Coats Disease Foundation

Jonah's Just Begun

KCNQ2 Cure Alliance

Kidney Cancer Association

Living With Trisomy 13

MdDS Balance Disorder Foundation

National Tay-Sachs and Allied Diseases Association

No Stomach for Cancer

Noonan Syndrome Foundation

PCDH19 Alliance

PMG Awareness Organization, Inc.

Potocki-Lupski Hope Project

PRISMS, (Parents and Researchers Interested in Smith-Magenis Syndrome)

Rasopathies Network

SAMSKARA

Small Cell Ovarian Cancer Foundation

Spastic Paraplegia Foundation

The Chagas Disease Foundation

The Charles E. Holman Morgellons Disease Foundation

The FPIES Foundation

The I Have IIH Foundation

The KAT6A Foundation

The National MPS Society

The Romberg Connection

Trisomy 18 Foundation

Turner Syndrome Foundation

University of Edinburgh

Vestibular Disorders Association