Welcome to the Turner Syndrome Research Exchange Clinical Registry

 

  

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Find out about research studies and clinical trials.

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W
elcome! The purpose of this website is for the Turner Syndrome Foundation to gather information about Turner Syndrome from people who are affected. The information can then be used in research studies and will help doctors and researchers better understand how Turner syndrome affects medical and psychological health.
 
Our goal is to improve the support and treatment available for girls and women with TS in the future. Please note that your identifying information will be kept separate from the other information that you share with us. Please also note that your identifying information/registration with the Turner Syndrome Foundation is separate from this clinical database that we seek to support and grow together.

 

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W
elcome! The purpose of this website is for the Turner Syndrome Foundation to gather information about Turner Syndrome from people who are affected. The information can then be used in research studies and will help doctors and researchers better understand how Turner syndrome affects medical and psychological health.
 
Our goal is to improve the support and treatment available for girls and women with TS in the future. Please note that your identifying information will be kept separate from the other information that you share with us. Please also note that your identifying information/registration with the Turner Syndrome Foundation is separate from this clinical database that we seek to support and grow together.

 

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