W
elcome to the Trisomy 18 Patient Insights Network (PIN), a research database of families and children impacted by a Trisomy 18 diagnosis. The purpose of this registry is to accelerate interest and investment in biomedical research to further Trisomy 18 knowledge, and to advance treatments.
This PIN is developed with the generous support of friends and families in the Trisomy 18 Foundation. To learn more about Trisomy 18 and how to support the development of the registry, please visit www.trisomy18.org.
1 out of every 3000 births in the United States is a child with Trisomy 18, many of them stillborn. That’s 10 new parents every day, facing an experience familiar to many other parents before them. Your willingness to share information about your child and your family’s experience with Trisomy 18 can make a difference to future parents. Scientists and doctors cannot proceed with research and treatment without our help and data.
Your participation in the Trisomy 18 PIN ensures that your family’s experience with Trisomy 18 will make a difference in changing our understanding around the disease, and building prevention and treatment for future families. Please register today. You are the key to progress.
W
elcome to the Trisomy 18 Patient Insights Network (PIN), a research database of families and children impacted by a Trisomy 18 diagnosis. The purpose of this registry is to accelerate interest and investment in biomedical research to further Trisomy 18 knowledge, and to advance treatments.
This PIN is developed with the generous support of friends and families in the Trisomy 18 Foundation. To learn more about Trisomy 18 and how to support the development of the registry, please visit www.trisomy18.org.
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