Because HSP and PLS are rare, they are often misdiagnosed, making the actual frequency difficult to determine. With fewer than 20,000 cases in the United States it is vital that the patient experience be better understood.
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Spastic Paraplegia PIN, we can safely connect participants with clinicians, researchers and drug developers and create a research-ready community for the benefit of all.
The Spastic Paraplegia Foundation, Inc. (SPF) is the only organization in the Americas dedicated to finding a cure for Spastic Paraplegia and Primary Lateral Sclerosis. We are a not-for-profit voluntary organization.
SPF is committed to providing information for families affected by these disorders, creating opportunities for mutual support and sharing, building this Patient Insights Network, and discovering the cures for HSP and PLS by funding research.
Because HSP and PLS are rare, they are often misdiagnosed, making the actual frequency difficult to determine. With fewer than 20,000 cases in the United States it is vital that the patient experience be better understood.
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Spastic Paraplegia PIN, we can safely connect participants with clinicians, researchers and drug developers and create a research-ready community for the benefit of all.
Login
Don't have an account? Register below.
SIGN UPLEARN MORE
