Welcome to the Small Cell Ovarian Cancer Foundation Patient Insights Network

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Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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S
mall Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that primarily affects young women. The median age of diagnosis is 24 years old. Approximately two-thirds of patients with ovarian small cell carcinoma have hypercalcemia. The SCCOHT Patient Insights Network (PIN) allows patients diagnosed with SCCOHT, their families and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues affecting individuals with SCCOHT, to improve the natural history for the diagnosis, gain insight into treatments, and to help us recruit for future pre-clinical research studies and therapeutic clinical trials, while educating the community and raising awareness around the disease.

WITH INVITAE, YOU’RE PART OF THE SOLUTION

Thanks to people like you, the experience of living with genetic conditions can be understood like never before. The more health information we collect through patient surveys and uploaded medical reports, the closer we can get to helping communities find treatments that work.

The Small Cell Ovarian Cancer Foundation is a non-profit organization whose goal is to provide support and assistance to patients and families who have been affected with SCCO, and to provide a clearinghouse for important and new information. Our ultimate goal is to help find a successful treatment and cure. Through fundraising efforts, we support research for this rare ovarian cancer.

The Small Cell Ovarian Cancer Foundation was created in memory of Stephanie Petersen, who said that she would always be involved in the fight against small cell ovarian cancer.

 

NOW AVAILABLE

PATIENT ACCESS TO INVITAE'S GENETIC TESTING

Patients and families can now order the same genetic tests used by experts. Our easy-to-use, online experience offers guidance throughout the process from well-established, independent telemedicine providers.

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This link is for informational purposes. PIN participants may access genetic testing through whichever lab and/or provider they feel most comfortable

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S
mall Cell Carcinoma of the Ovary, Hypercalcemic Type (SCCOHT) is a rare, highly malignant tumor that primarily affects young women. The median age of diagnosis is 24 years old. Approximately two-thirds of patients with ovarian small cell carcinoma have hypercalcemia. The SCCOHT Patient Insights Network (PIN) allows patients diagnosed with SCCOHT, their families and researchers to gather and share information and health history in a safe, confidential, online database.
 
This registry will help us better understand the major health issues affecting individuals with SCCOHT, to improve the natural history for the diagnosis, gain insight into treatments, and to help us recruit for future pre-clinical research studies and therapeutic clinical trials, while educating the community and raising awareness around the disease.

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