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he PMG Awareness Organization is happy to announce this disease Patient Insights Network (PIN). We invite all polymicrogyria (PMG) patients and families to join this registry and to provide de-identified medical information that will help everyone in the global PMG community to learn more about the disease. The goal is improved diagnosis and medical care, as well as empowering patients and families with knowledge, connections and support.
WITH INVITAE, YOU’RE PART OF THE SOLUTION
Thanks to people like you, the experience of living with genetic conditions can be understood like never before. The more health information we collect through patient surveys and uploaded medical reports, the closer we can get to helping communities find treatments that work.
The PMG Awareness Organization is an international non-profit organization of families, caregivers, and medical professionals who care about those with polymicrogyria. Our mission is to promote awareness, diagnosis, and the treatment of the disease through education, research, advocacy, and support for individuals with polymicrogyria, their families, and other concerned parties.
T
he PMG Awareness Organization is happy to announce this disease Patient Insights Network (PIN). We invite all polymicrogyria (PMG) patients and families to join this registry and to provide de-identified medical information that will help everyone in the global PMG community to learn more about the disease. The goal is improved diagnosis and medical care, as well as empowering patients and families with knowledge, connections and support.
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