Welcome to the Noonan Syndrome Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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W
elcome to the Noonan Syndrome Foundation’s Patient Insights Network (PIN) for individuals affected by Noonan syndrome and Noonan syndrome with multiple lentigines (or LEOPARD syndrome). Your willingness to share information about yourself or your child can help us make a difference.
 
This database will be accessible to researchers around the world interested in studying Noonan syndrome and Noonan syndrome with multiple lentigines (or LEOPARD syndrome). For more information please contact the Noonan Syndrome Foundation at info@teamnoonan.org.

Click here to register now!

W
elcome to the Noonan Syndrome Foundation’s Patient Insights Network (PIN) for individuals affected by Noonan syndrome and Noonan syndrome with multiple lentigines (or LEOPARD syndrome). Your willingness to share information about yourself or your child can help us make a difference.
 
This database will be accessible to researchers around the world interested in studying Noonan syndrome and Noonan syndrome with multiple lentigines (or LEOPARD syndrome). For more information please contact the Noonan Syndrome Foundation at info@teamnoonan.org.

LEARN MORE