his PIN (Patient Insights Network) was created to develop a comprehensive database of individuals with Mal de Débarquement Syndrome (MdDS). It allows patients, family members, and researchers to gather information in a safe and confidential way. By collecting critical information to understand the history and progression of MdDS, this network makes it easier for researchers to study, for patients and families to learn about treatments, and for advocates to speak on behalf of those with this condition.
This PIN seeks to grow the knowledge base surrounding MdDS. By joining this registry, dedicating your time, and sharing your family history, you will help to build better lives for everyone with MdDS. Thank you!
With this Patient Insights Network (PIN), we seek to establish consistent patient information to provide more accurate data to medical professionals and researchers.
his PIN (Patient Insights Network) was created to develop a comprehensive database of individuals with Mal de Débarquement Syndrome (MdDS). It allows patients, family members, and researchers to gather information in a safe and confidential way. By collecting critical information to understand the history and progression of MdDS, this network makes it easier for researchers to study, for patients and families to learn about treatments, and for advocates to speak on behalf of those with this condition.
This PIN seeks to grow the knowledge base surrounding MdDS. By joining this registry, dedicating your time, and sharing your family history, you will help to build better lives for everyone with MdDS. Thank you!