W
elcome to the KCNQ2 Cure Alliance’s Patient Insights Network (PIN). The purpose of this registry is to consolidate information from individuals with KCNQ2-related epilepsy into a single database, which will be utilized by researchers to understand KCNQ2-related epilepsies better.
The KCNQ2 PIN will organize a system of information that will use observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for KCNQ2 epileptic mutations.
The KCNQ2 registry can offer adaptable designs and data collection strategies, making them particularly useful as treatments rapidly change. The registry will reveal crucial data for scientists that will speed up the development of drugs and new treatments for individuals with KCNQ2 mutations.
W
elcome to the KCNQ2 Cure Alliance’s Patient Insights Network (PIN). The purpose of this registry is to consolidate information from individuals with KCNQ2-related epilepsy into a single database, which will be utilized by researchers to understand KCNQ2-related epilepsies better.
Login
Don't have an account? Register below.
SIGN UPLEARN MORE
