W
elcome to the IETF essential tremor registry (or PIN which stands for Patient Insights Network). The purpose of this registry is to create a comprehensive database of individuals with essential tremor to better understand the impact this condition has on nearly 10 million people diagnosed in the US, and many more globally.
While essential tremor has been considered benign by many in the healthcare community, we know this is not the case. Your information will help provide the research community with the data needed to determine what areas require further research so that effective treatments and eventually a cure may be found.
The IETF is a 501(c)3 non-profit organization that funds research, treatment development, increases awareness and provides educational materials, tools and support for healthcare providers, the public and those affected by ET.
By joining this registry, you raise the visibility of the disease and send an important message to the research community that more effective treatments are desired by the patient population.
W
elcome to the IETF essential tremor registry (or PIN which stands for Patient Insights Network). The purpose of this registry is to create a comprehensive database of individuals with essential tremor to better understand the impact this condition has on nearly 10 million people diagnosed in the US, and many more globally.
While essential tremor has been considered benign by many in the healthcare community, we know this is not the case. Your information will help provide the research community with the data needed to determine what areas require further research so that effective treatments and eventually a cure may be found.
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