Welcome to the Hist1H1E Syndrome

Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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T
his Patient Insights Network was created to develop a comprehensive data bank of individuals with HIST1H1E Syndrome.  This PIN (registry) will allow patients, family members and researchers to gather information in a safe, confidential, online database.  It will collect critical information to understand the history and progression of HIST1H1E Syndrome, to make it easier for researchers to study and for patients/families to find out more information about the characteristics of this syndrome.

Click here to register now!

 
 
T
his Patient Insights Network was created to develop a comprehensive data bank of individuals with HIST1H1E Syndrome.  This PIN (registry) will allow patients, family members and researchers to gather information in a safe, confidential, online database.  It will collect critical information to understand the history and progression of HIST1H1E Syndrome, to make it easier for researchers to study and for patients/families to find out more information about the characteristics of this syndrome.

LEARN MORE