Welcome to the GNAO1 International Registry

Bringing together families, clinicians and scientists. Share your voice to advance research.

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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Knowledge gives us power. Sharing gives us strength.

The Bow Foundation launched the GNAO1 International Patient Registry to accelerate medical research into meaningful health outcomes for GNAO1-related neurodevelopmental disorders. The registry is a key step towards establishing a better understanding of GNAO1 disorders.  The registry will:

  • Allow researchers to focus on new studies to address the most important GNAO1 challenges.
  • Provide valuable information for families and doctors looking to make the best care decisions for loved ones. 
  • Help scientists locate GNAO1 patients who might be candidates for their research studies. 

Thanks for your interest in joining the GNAO1 International Patient Registry. We hope you'll join us as we work to enhance the understanding of GNAO1 and its diverse impacts on patients.

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Knowledge gives us power. Sharing gives us strength.

The Bow Foundation launched the GNAO1 International Patient Registry to accelerate medical research into meaningful health outcomes for GNAO1-related neurodevelopmental disorders. The registry is a key step towards establishing a better understanding of GNAO1 disorders.  The registry will:

  • Allow researchers to focus on new studies to address the most important GNAO1 challenges.
  • Provide valuable information for families and doctors looking to make the best care decisions for loved ones. 
  • Help scientists locate GNAO1 patients who might be candidates for their research studies. 

Thanks for your interest in joining the GNAO1 International Patient Registry. We hope you'll join us as we work to enhance the understanding of GNAO1 and its diverse impacts on patients.

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