Welcome to the GM2 Tay-Sachs and Sandhoff Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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our experience matters in the quest to find treatments! Join the global community and share your experiences that are vital to the advancement of research toward effective and safe treatments. Privacy is of the utmost importance; therefore, your information will remain private and de-identified. This data will be an immensely important tool for understanding our community and will greatly impact the path of clinical trial readiness.
 
Your input is important! Whether your child has (or had) the infantile or juvenile forms of Tay-Sachs or Sandhoff, or if you are affected by the Late Onset form, your input is critical. We ask for you to share as much information as possible.
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Y
our experience matters in the quest to find treatments! Join the global community and share your experiences that are vital to the advancement of research toward effective and safe treatments. Privacy is of the utmost importance; therefore, your information will remain private and de-identified. This data will be an immensely important tool for understanding our community and will greatly impact the path of clinical trial readiness.
 
Your input is important! Whether your child has (or had) the infantile or juvenile forms of Tay-Sachs or Sandhoff, or if you are affected by the Late Onset form, your input is critical. We ask for you to share as much information as possible.

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