National Tay-Sachs & Allied Diseases Association (NTSAD), along with the Cure Tay-Sachs Foundation (CTSF), has launched the first GM2 Tay-Sachs and Sandhoff Disease PIN as a tool to collect data and patient experiences that could ultimately help promising research advance to clinical trials.
We are now in a critical space where the research and technology landscapes are evolving in the field of lysosomal storage diseases (LSD). We are seeing clinical trials launched for treatments of other LSDs which is hopeful for our group of rare diseases. To have success, the data must be strong and comprehensive, and that’s where you play a role.
Join the quest for treatments today!
Patients and families can now order the same genetic tests used by experts. Our easy-to-use, online experience offers guidance throughout the process from well-established, independent telemedicine providers.
This link is for informational purposes. PIN participants may access genetic testing through whichever lab and/or provider they feel most comfortable
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