Welcome to the DCM Foundation

 

Patient Insights Network

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Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Share and encourage others to learn more about DCM.

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D
ilated Cardiomyopathy (DCM) is a heart condition that impacts an estimated one in 250 people. Close to 50% of the time, the cause of DCM is unknown; this is referred to as idiopathic DCM. There is growing evidence that most idiopathic DCM is genetic and can run in families.

The DCM Foundation is partnering with Invitae on the Patient Insights Network (PIN) so that patients diagnosed with DCM and their at-risk family members can share information that may help researchers gain valuable insights into future DCM treatments. Your willingness to participate will help us educate the DCM community and recruit for future research studies.

The information you consent to share in this registry will always be de-identified and confidential. This means that your name or other identifying information will never be linked with the information you share in this registry. Please contact info@dcmfoundation.org for any questions.

The DCM Foundation is a 501(c)(3) non-profit organization with a mission to provide hope and support to DCM patients and their families through research, advocacy and education. We strive to connect with and offer best the possible resources for all families impacted by DCM. Through our connections with families, researchers and organizations studying DCM, we hope to increase understanding of this disease and become the leading advocate for future treatments and therapies.

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NOW AVAILABLE

PATIENT ACCESS TO INVITAE'S GENETIC TESTING

Patients and families can now order the same genetic tests used by experts. Our easy-to-use, online experience offers guidance throughout the process from well-established, independent telemedicine providers.

Learn More

This link is for informational purposes. PIN participants may access genetic testing through whichever lab and/or provider they feel most comfortable


Click here to register now!

 
 
D
ilated Cardiomyopathy (DCM) is a heart condition that impacts an estimated one in 250 people. Close to 50% of the time, the cause of DCM is unknown; this is referred to as idiopathic DCM. There is growing evidence that most idiopathic DCM is genetic and can run in families.

The DCM Foundation is partnering with Invitae on the Patient Insights Network (PIN) so that patients diagnosed with DCM and their at-risk family members can share information that may help researchers gain valuable insights into future DCM treatments. Your willingness to participate will help us educate the DCM community and recruit for future research studies.

The information you consent to share in this registry will always be de-identified and confidential. This means that your name or other identifying information will never be linked with the information you share in this registry. Please contact info@dcmfoundation.org for any questions.

LEARN MORE

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