Welcome to the Costello Syndrome Patient Insights Network

  

Join patients around the world in building the PIN community.

START MY PROFILE

  

Find out about research studies and clinical trials.

LEARN MORE

  

Advance research and speed development of treatments.

SHARE

 

T

hank you for visiting the Costello Syndrome Patient Insight Network! This network was created by the Costello Syndrome Family Network to help people with Costello syndrome and their families. The goals of this network are:

 

 

 

•Collecting and organizing health data about Costello syndrome in a central location.

 

•Learning what areas of research are most important to families of people with Costello syndrome.

 

•Accelerating patient-centered research and attracting research partners to address the needs prioritized by the Costello syndrome community.

 

•Increasing awareness of Costello syndrome and providing easy to understand information about Costello syndrome to those who wish to learn more.  

 

•Improving international access to reliable information about Costello syndrome and promoting research opportunities.

 

Your participation and willingness to share information will help lead to better understanding, care, surveillance, and treatments for people with Costello syndrome. The information that you provide is de-identified to protect the privacy of patients and families. If you have any questions, concerns, or would like to learn more about Costello syndrome and this Patient Insight Network, please feel free to contact the Costello Syndrome Family Network.

 

Frontpage Slideshow | Copyright © 2006-2011 JoomlaWorks Ltd.

Click here to register now!

 

T

hank you for visiting the Costello Syndrome Patient Insight Network! This network was created by the Costello Syndrome Family Network to help people with Costello syndrome and their families. The goals of this network are:

 

 

 

•Collecting and organizing health data about Costello syndrome in a central location.

 

•Learning what areas of research are most important to families of people with Costello syndrome.

 

•Accelerating patient-centered research and attracting research partners to address the needs prioritized by the Costello syndrome community.

 

•Increasing awareness of Costello syndrome and providing easy to understand information about Costello syndrome to those who wish to learn more.  

 

•Improving international access to reliable information about Costello syndrome and promoting research opportunities.

 

Your participation and willingness to share information will help lead to better understanding, care, surveillance, and treatments for people with Costello syndrome. The information that you provide is de-identified to protect the privacy of patients and families. If you have any questions, concerns, or would like to learn more about Costello syndrome and this Patient Insight Network, please feel free to contact the Costello Syndrome Family Network.

 

Phones and tablets may default the first letter to uppercase.

LEARN MORE