Welcome to the CDG Connect Patient Insights Network

  

Join patients around the world in building the PIN community.

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Read CDGConnect FAQs, and learn more about this PIN.

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Advance research and help speed development of new treatments.

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DG Connect was created to develop a comprehensive database of individuals with Congenital Disorders of Glycosylation (CDG). It allows patients, family members, and researchers to gather information in a safe and confidential way.
 
Why join the CDG Connect Patient Insight Network? Because your participation is important to collect critical information to understand the history and progression of CDG, to make it easier for researchers to study CDG, for patients and families to learn about CDG treatment options, and for advocates to speak on behalf of the CDG community.
 
Sharing your health information through a patient registry will allow doctors and researchers to gain valuable data that can be used toward future CDG breakthroughs and optimize the search for better treatments for children and adults affected by CDG.
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C
DG Connect was created to develop a comprehensive database of individuals with Congenital Disorders of Glycosylation (CDG). It allows patients, family members, and researchers to gather information in a safe and confidential way.
 
Why join the CDG Connect Patient Insight Network? Because your participation is important to collect critical information to understand the history and progression of CDG, to make it easier for researchers to study CDG, for patients and families to learn about CDG treatment options, and for advocates to speak on behalf of the CDG community.
 
Sharing your health information through a patient registry will allow doctors and researchers to gain valuable data that can be used toward future CDG breakthroughs and optimize the search for better treatments for children and adults affected by CDG.

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