W
hy join the CDG Connect Patient Insight Network? Because your participation is important to collect critical information to understand the history and progression of CDG, to make it easier for researchers to study CDG, for patients and families to learn about CDG treatment options, and for advocates to speak on behalf of the CDG community.
CDG Connect is a patient registry created to advance the understanding of Congenital Disorders of Glycosylation. Enroll in the registry to share your experiences, access data and insights, and learn more about new CDG clinical trials. Your participation will help us discover findings to improve patient lives. Together, we can build the CDG Connect community.
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W
hy join the CDG Connect Patient Insight Network? Because your participation is important to collect critical information to understand the history and progression of CDG, to make it easier for researchers to study CDG, for patients and families to learn about CDG treatment options, and for advocates to speak on behalf of the CDG community.
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