Why does ANA have a patient registry?
Acoustic neuromas, also known as vestibular schwannomas, are rare. Little research exists about the condition, along with information about people who have them. By sharing information about your acoustic neuroma journey, you can help the entire community of those who have been diagnosed with acoustic neuromas.
Your participation can help to encourage research studies and to accelerate therapies, as well as to increase our understanding of the issues surrounding acoustic neuromas.
WITH INVITAE, YOU’RE PART OF THE SOLUTION
Thanks to people like you, the experience of living with genetic conditions can be understood like never before. The more health information we collect through patient surveys and uploaded medical reports, the closer we can get to helping communities find treatments that work.
Why does ANA have a patient registry?
Acoustic neuromas, also known as vestibular schwannomas, are rare. Little research exists about the condition, along with information about people who have them. By sharing information about your acoustic neuroma journey, you can help the entire community of those who have been diagnosed with acoustic neuromas.
Your participation can help to encourage research studies and to accelerate therapies, as well as to increase our understanding of the issues surrounding acoustic neuromas.
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