elcome to the RARE Melanoma PIN (Patient Insights Network). RARE is a registry for patients with acral, mucosal, or cutaneous melanoma that provides a free, interactive web and mobile-friendly tool to share information and experiences, disease history, advance research and awareness, and get potential matches to clinical trials. RARE is also a great way to get connected to a community of people who know firsthand what it’s like to face a rare melanoma subtype.
Which organization is responsible for this registry?
The RARE Melanoma PIN is an initiative led by the Melanoma Research Alliance (MRA), with an Oversight Committee made up of 12 patients with melanoma or their loved ones, and 9 scientists from top cancer centers. MRA was formed in 2007 and is the largest non-profit funder of melanoma research worldwide. Since its founding, MRA has committed $131 million USD, and leveraged an additional $415 million from outside sources, to fund life-saving melanoma research needed to achieve its mission of ending suffering and death due to melanoma. Learn more about MRA at www.CureMelanoma.org.
elcome to the RARE Melanoma PIN (Patient Insights Network). RARE is a registry for patients with acral, mucosal, or cutaneous melanoma that provides a free, interactive web and mobile-friendly tool to share information and experiences, disease history, advance research and awareness, and get potential matches to clinical trials. RARE is also a great way to get connected to a community of people who know firsthand what it’s like to face a rare melanoma subtype.
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