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Join the GM1 Patient Network to accelerate treatment for GM1 Gangliosidosis!
Collecting the health information of those impacted by GM1 gangliosidosis is essential for advancing medical research and developing drugs for treatment.
You can help build momentum by joining this shared network, and by contributing your data about GM1. All data is de-identified and highly secure, and is an extremely valuable tool for understanding the patient population and planning clinical trials. As a patient, you can also receive useful information regarding research opportunities as they become available.
Research is advancing on multiple fronts globally. By pulling these efforts together into one registry, we bring ourselves closer to an end to GM1 conditions. Please join us now!
This PIN will serve as the largest registry of GM1 patients globally. By coming together, we not only demonstrate our collective commitment to a cure, but also offer researchers and industry leaders the most efficient and uniform source to advance all treatments.
Join us today. Plus during account set-up, you will have the chance to share your email address with the Cure GM1 mailing list and receive messages about relevant developments and clinical trial opportunities.
If you have any questions about participating in the GM1 Patient Network, please contact us.
NOW AVAILABLE
PATIENT ACCESS TO INVITAE'S GENETIC TESTING
Patients and families can now order the same genetic tests used by experts. Our easy-to-use, online experience offers guidance throughout the process from well-established, independent telemedicine providers.
This link is for informational purposes. PIN participants may access genetic testing through whichever lab and/or provider they feel most comfortable
Partner organizations
.jpg)
Join the GM1 Patient Network to accelerate treatment for GM1 Gangliosidosis!
Collecting the health information of those impacted by GM1 gangliosidosis is essential for advancing medical research and developing drugs for treatment.
You can help build momentum by joining this shared network, and by contributing your data about GM1. All data is de-identified and highly secure, and is an extremely valuable tool for understanding the patient population and planning clinical trials. As a patient, you can also receive useful information regarding research opportunities as they become available.
Research is advancing on multiple fronts globally. By pulling these efforts together into one registry, we bring ourselves closer to an end to GM1 conditions. Please join us now!
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