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our voice matters. The Invitae Connect Patient Insights Network (PIN) amplifies the voice of patients to help researchers and drug developers find better treatments, faster. Register now to become part of a research-ready PIN with participants from around the world.
 
We believe that patients own their data and have the right to share it in a manner that protects their privacy. Through the Invitae Connect PIN, we connect participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.
 

Partner Organizations

America

Abby Grace Foundation

Abby Grace Foundation

Wendy Furgeson
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Ben's Dream

Ben's Dream

Stuart Sideman
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Ph: 617-899-4158
JLK Sanfilippo Research Foundation

JLK Sanfilippo Research Foundation

JLK Sanfilippo Research Foundation
PO Box 564
Belmont, MA 02478
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Jonah's Just Begun-Foundation to Cure Sanfilippo Inc.

Jonah's Just Begun-Foundation to Cure Sanfilippo Inc.

Jill Wood
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Ph: 347-689-2186
National MPS Society

National MPS Society

Mark Dant
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Ph: 877-MPS-1001
Ryan MPS

The Ryan Foundation

www.ryanfoundation.net
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Ph: 214-870-RYAN
Team Sanfilippo Foundation

Team Sanfilippo Foundation

PO Box 1152
Ronkonkoma, NY 11779
518-879-6571
The Children's Medical Research FoundationCure Kirby

The Children's Medical Research Foundation, Inc.

P. O. Box 70
Western Springs, Illinois 60558
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Argentina

Association MPS Argentina

Association MPS Argentina

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Australia

Sanfilippo Children's Foundation

Sanfilippo Children's Foundation

Megan Donnell
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Brazil

Sanfilippo Brasil

Sanfilippo Brasil

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Belgium

Belgium

Boks VZW Belgium

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Canada

Sanfilippo Children's Research Foundation - A life for Elisa

The Sanfilippo Children's Research Foundation

41 Gwendolen Avenue, Willowdale
Ontario Canada M2N 1A1
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Canadian

Canadian MPS Society

Kim Angel
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Colombia

Fundacion Sanfilippo Colombia

Fundacion Sanfilippo Colombia

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Ph: +57 305-363-1478

France

Le combat de Haitem contre Sanfilippo

Le combat de Haitem contre Sanfilippo

1 bis rue Saint Pierre
93110 Rosny sous bois
France
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SS for PCR

Sanfilippo Sud

Guilhain Higonnet
France
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Hong Kong

Hong Kong

Hong Kong MPS Mutal Aid Group

G/F, Wang Lai House
Wang Tau Hom Estate
Kowloon
Hong Kong
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Mexico

Sanfilippo Red

RED Sanfilippo Fundacion

León Gto., Mexico
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Teléfono.: +52 (477) 1092133
Teléfono.: +52 (477) 2802408

New Zealand

ISMRD - The International Advocate for Glycoprotein Storage Diseases

ISMRD - The International Advocate for Glycoprotein Storage Diseases

Jenny Noble
167 Hollister Lane
Ohauiti, Tauranga, New Zealand
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Ph: +64-7-5448868

Poland

Adam and Lea Versus Sanfilippo

Adam and Lea Versus Sanfilippo

Krzysztof and Tola Kusidlo
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Mały Maciek i Wielcy Czarodzieje

Mały Maciek i Wielcy Czarodzieje

Arleta Feldman
Poland
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Portugal

Sanfilippo Portugal

Sanfilippo Portugal

Raquel Marques
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Spain

Foundation Sanfilippo B

Foundation Sanfilippo B

Marta Vazquez
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Sanfilippo Barcelona

Sanfilippo Barcelona

Belen Garcia, Spain
Stop Sanfilippo Fundacion

Stop Sanfilippo Fundacion

Av. Camino de Santiago, 45
28050 Madrid, Spain
610 893 873/637 822 377

Switzerland

Fondation Sanfilippo Suisse

Fondation Sanfilippo Suisse

Isabelle Costes
Fondation Sanfilippo Suisse
2, rue de Jargonnant
CH-1207 Genève
Switzerland
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